Crucial early interventions, therapies for children & combating challenges of social inclusion

Sowmya Raju | NT

Bengaluru: Bengaluru is making strides in fostering greater inclusion for individuals with Down Syndrome.

Despite growing awareness, there remains a significant need for more resources and support.

However, parent-led organizations are stepping up, playing a vital role in advocating for crucial aspects like early intervention therapies, inclusive education, and vocational training opportunities.

These collective efforts aim to empower individuals with Down syndrome in Bengaluru to realize their full potential and lead fulfilling lives within their community.

A report in 2022 revealed that around 30,000-35,000 children are born with Down syndrome in India each year.

There's a lack of comprehensive national data on the total number of people living with Down syndrome in India, and existing data often focuses on births in hospitals, potentially missing individuals undiagnosed or born at home.

Down Syndrome, a genetic condition resulting from an error in cell division leading to an extra chromosome, impacts cognitive ability and physical growth, and increases the risk of health issues.

Common characteristics include Mongoloid facies, low muscle tone, seizures, and difficulties with attention.

Dr. Sujatha Thyagarajan, Senior Consultant – Pediatrics and Pediatric Intensive Care at Aster RV Hospital, said, “In Bengaluru, prenatal screening and diagnostic tests such as Chorionic Villus Sampling (CVS) and Amniocentesis are available after 15 weeks of pregnancy to detect Down syndrome in fetuses.”

The approach to managing Down syndrome has evolved in recent years, with growing acceptance and inclusion in daily activities. However, significant challenges persist, necessitating ongoing efforts.

Dr. Sujatha urges, “Early intervention programs and therapies like physical therapy, speech-language therapy, occupational therapy, and emotional/behavioral therapy are crucial for children with Down syndrome to enhance motor skills, communication, daily tasks, and behavioral management.”

She further added that as individuals with Down syndrome age, regular annual screenings are essential for early detection and intervention due to a higher risk of medical conditions and health issues.

In Bengaluru, numerous support groups and centers assist not only individuals with Down syndrome but also their families, offering counseling and coping mechanisms for the challenges they face.

Dr. Sujatha shared, “Social inclusion and access to opportunities pose significant challenges due to misconceptions and slower cognitive abilities, necessitating efforts to promote awareness, understanding, and integration.”

Dr. Sujatha suggests promoting awareness through campaigns, workshops, and seminars, coupled with providing adequate support and resources, can foster a more inclusive society where individuals with Down syndrome are embraced and included.

She added that recent advancements in research offer hope, including vaccines, drugs, and hormone therapies aimed at enhancing cognitive performance and improving the quality of life for individuals with Down syndrome.

Healthcare professionals play a pivotal role in advocating for the Down syndrome community by educating families, facilitating early intervention, and supporting integration into everyday life.

On World Down Syndrome Day, let us reaffirm our commitment to creating a more inclusive society where individuals with Down syndrome are valued, supported, and empowered without discrimination.